support for parents

To move from that place of fear to this moment in time, I had to trust TJ with eating. It sounds easy.

It’s not.

Sky Van Zetten

parent expert articles and posts

Concept of Pediatric Feeding Problems: From the Parent Perspective, American Journal of Maternal and Child Nursing 2016
When Your Baby Won’t Eat by writer and mother Virginia Sole-Smith NYT magazine
Don’t Judge Me For What’s in My Son’s Lunchbox ScaryMommy blog
When the Diagnosis is Rare, Parents May Know More Than the Experts: NYT blog
Swallowing Skills, Dysphagia and Treatment: Feeding Matters blog
Breadmaker Dinner Rolls with a Side of Courage: Mealtime Hostage
When People Say,’You Feed Her What?’ Hillary Savoie on home-made blended formula
The Importance of Tube Feeding Comfort A mother’s post about trust

parent support

Our go-to resource for parents struggling with extreme picky eating is the blog and facebook page called Mealtime Hostage. Skye Van Zetten, mother of a selective eater, is the creator and moderator of the private facebook support group for parents. This safe space provides support, resources, a listening ear, and more.

extreme picky eating resources

helpful gear

Chewy Tubes®: Made in the USA! ARK’s Y-Chews are a safe way to exercise the mouth muscles, build oral tone, practice biting and chewing skills, and provide tactile sensory input to the lips, tongue, cheeks, and jaw.
DuoSpoon: oral exploration motor tool for children who have sensory challenges. Use it as a dipper to pair the child’s favorite smooth purees with the DuoSpoon. The DuoSpoon can also be used as an aid to help increase upper lip activity and food removal.
ezpz Happy Bowls and Happy Mats designed by feeding therapists for home or therapy settings
Ark’s Basic Bear Straw Bottle
Arks Cip-Kup
Thera-Tubing
NUK® brushes
Jenny’s Article for Wold + Friends on Game Changing Tools That Give Independence…
Tri-Chew
DOIDY cup: designed with unique slant to teach children to drink from a rim, not a spout
Lollacup: two-handled cup with a weighted, valve-free straw that keeps in the liquid so the child can drink even when the cup is tilted and allows for easier drinking
Playtex® Coolster®
Inflatable Sensory Cushion
Wow Cup: no spill tumbler that supports healthy oral-motor development

sensory play and fun

Creative With Kids
Mealtime Notions
Sensory Bin Activities
Sensory Smarts: Sensory “Diet” Activities around your child’s sensory needs. Seeker? Avoider? Tips for both.

ARFID twitter chat with links

SUMMARY OF TWEET CHAT 1/21/2016: Understanding an ARFID Diagnosis and Children Struggling with Selective Eating

Kerzner paper in Academy of Pediatrics Classifying and managing feeding challenges Mei 2004 article on shifts in percentiles in children’s growth http://1.usa.gov/1RlEthS Failure to Thrive Current Clinical practice, Pediatric Review 2011 http://1.usa.gov/1l64Hqq Legler paper Assessment of Abnormal Growth Curves Gurze Eating Disorder catalog Q and A http://bit.ly/1ImsrBE Hobart Davies paper Reconceptualizing feeding and feeding disorders in interpersonal context Blog post on avoiding trauma in pediatric feeding therapies Zucker article on psychological and psychosocial impairment with selective eating http://bit.ly/1n0n6pY Pediatric Feeding News book excerpt on bridging to new foods http://bit.ly/1UqsDR6 What is author’s STEPS+ approach http://bit.ly/1Pb2PEM 5 Common Problems behind extreme picky eating Real Mom Nutrition blog http://bit.ly/1Ov265f What is “extreme” picky eating? blog post, author’s definition http://bit.ly/1iePCSt Suzanne Evans-Morris SLP PhD on the importance of happiness at mealtimes http://bit.ly/1PI9aMH Autism and branching out article by Marsha Dunn-Klein MEd, OT http://bit.ly/1mvawiO Sensory input and the mouth article by Suzanne Evans-Morris SLP, PhD http://bit.ly/1O0qx9b Black and Aboud framing of Responsive Feeding http://1.usa.gov/1Ovq0xp Visual and message on importance of trust and relationship with feeding http://bit.ly/1RqdTCD America Did Not Invent the Picky Eater blog from Mealtime Hostage Mothers with ED may struggle with feeding cues and responsive feeding Squires 2014 paper Resources for responsive feeding support and anticipatory guidance: English 2009, and 2015 Kerzner paper identify Ellyn Satter’s Division of Responsibility as responsive feeding “operationalized” (English). The following include parent and professional resources. The website is a wealth of free articles and learning modules. www.ellynsatterinstitute.org Feeding with Love and Good Sense II DVD Child of Mine Feeding Pamphlets age appropriate, short and to the point Masters for primary care easy-to-read handouts for anticipatory guidance and avoiding harm

general resources

parenting books and articles

books and articles:

Nurtured Heart approach
Love and Logic
buildingfamilycounseling.com
Kids Beyond Limits: book by Anat Baniel
How to Talk so Kids Will Listen, and Listen so Kids Will Talk: book by Adele Faber and Elaine Mazlish;
The Explosive Child: Understanding and Helping Easily Frustrated, Chronically Inflexible Children: book by Ross W. Greene, Ph.D.
How Children Succeed: book by Paul Tough

1-2-3 Magic Parenting
Sleepless in America: book by Mary Sheedy-Kurcinka on sleep
Healthy Sleep Habits, Happy Child: book by Mark Weissbluth
Playful Parenting and The Opposite of Worry: books by Lawrence Cohen
What to Do When You Worry Too Much: book by Dawn Huebner
Nobody Ever Told Me (Or My Mother!) That: Everything From Bottles to Breathing to Healthy Speech Development: book by Diane Bahr, SLP

parent support

Mealtime Hostage website and private facebook group specifically for parents of children with extreme picky eating
Support for Special Needs website and facebook
Feeding Matters advocacy and parent-to-parent support
Building Family Counseling Dawn Friedman’s MSEd, LPC-CR blog and website